{"id":9392,"date":"2018-10-23T09:28:40","date_gmt":"2018-10-23T12:28:40","guid":{"rendered":"https:\/\/www.univ-guyane.fr\/?p=9392"},"modified":"2024-06-27T09:34:13","modified_gmt":"2024-06-27T12:34:13","slug":"5eme-conference-caribeenne-sur-la-drepanocytose-et-les-thalassemies","status":"publish","type":"post","link":"https:\/\/www.univ-guyane.fr\/es\/2018\/10\/23\/5eme-conference-caribeenne-sur-la-drepanocytose-et-les-thalassemies\/","title":{"rendered":"V Conferencia del Caribe sobre Anemia Falciforme y Talasemia"},"content":{"rendered":"
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La 5\u00aa Conferencia del Caribe sobre Anemia Falciforme y Talasemia, organizada por CAREST y GR-Ex se celebrar\u00e1 del 24 al 26 de octubre de 2018 en la Universidad de Guyana, para un momento especial de intercambio entre cl\u00ednicos, investigadores, representantes de asociaciones de familiares de pacientes<\/h2>\n<\/div>\n\n\n\n\n
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El tema de este a\u00f1o es \"Anemia falciforme y talasemia: actualizaci\u00f3n sobre tratamiento e investigaci\u00f3n\".<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Mi\u00e9rcoles 24<\/strong><\/h3>\n

15.00 - 17.00 h<\/strong>\u00a0Reuni\u00f3n informativa, debate\u00a0<\/strong>(p\u00fablico: alumnos de \u00faltimo curso, estudiantes de la Universidad de Guyana)\u00a0:\u00a0<\/strong><\/p>\n

\u00bfQu\u00e9 es CAREST?<\/p>\n

Carreras de investigaci\u00f3n<\/p>\n

Intercambios internacionales e investigaci\u00f3n Participantes: representantes del Inserm, las universidades de Par\u00eds Diderot, Par\u00eds Descartes, Antillas, S\u00e3o Paulo, La Habana, Santo Domingo, la Universidad Federal de R\u00edo de Janeiro, el Imperial College de Londres, la Universidad de Guyana y el Grupo de Inter\u00e9s Cient\u00edfico de Guyana.<\/p>\n

7.00-8.00 p.m. -<\/strong>\u00a0Ceremonia de apertura\u00a0<\/strong><\/p>\n

Jueves 25<\/strong><\/h3>\n

7.00 - 8.30 h<\/strong>\u00a0-\u00a0Inscripci\u00f3n\u00a0<\/em><\/p>\n

Epidemiolog\u00eda de las enfermedades de los hemat\u00edes<\/strong>
\nModeradores: Jacques Elion y Narcisse Elenga\u00a0<\/em><\/p>\n

8h30 - 8h50<\/strong>\u00a0- Epidemiolog\u00eda mundial de las hemoglobinopat\u00edas: Fr\u00e9d\u00e9ric Piel (Londres, Reino Unido)<\/p>\n

8h50 - 9h05<\/strong>\u00a0El Caribe en el punto de mira: Marc Romana (Pointe-\u00e0-Pitre, Guadalupe, Francia)<\/p>\n

9.05 h - 9.25 h\u00a0<\/strong>\u00a0Deficiencia de G6PD, actualizaci\u00f3n: Fr\u00e9d\u00e9ric Galact\u00e9ros (Cr\u00e9teil, Francia)<\/p>\n

9.25 h - 9.45 h<\/strong>\u00a0- Transici\u00f3n epidemiol\u00f3gica de la drepanocitosis en \u00c1frica Occidental y Central: evoluci\u00f3n de la morbilidad y la mortalidad en las zonas urbanas: Brigitte Ranque (GR-Ex - Par\u00eds, Francia)<\/p>\n

9.45 - 10.00 h<\/strong>Debate<\/p>\n

10.00 - 10.20 h.<\/strong>\u00a0Presentaciones orales seleccionadas<\/p>\n

\"La anemia falciforme en Venezuela est\u00e1 actualmente en crisis (Venezuela)\": Adriana Bello (Caracas, Venezuela)<\/p>\n

\"Programa Cubano de Prevenci\u00f3n de la Anemia Falciforme. Treinta y cinco a\u00f1os de resultados (Cuba)\": Beatriz Marcheco-Teruel (La Habana, Cuba)<\/p>\n

10.20 h - 10.35 h\u00a0<\/strong>Debate<\/p>\n

10.35 h - 11.00 h<\/strong>\u00a0Pausa<\/p>\n

Atenci\u00f3n integral: recomendaciones\u00a0Moderadores\u00a0<\/em>:\u00a0Mariane de Montalembert y Ketty Lee\u00a0<\/em><\/p>\n

11.00 - 11.20 h<\/strong>\u00a0Indicaciones de esplenectom\u00eda en los trastornos de la membrana de los hemat\u00edes: Lo\u00efc Gar\u00e7on (Amiens, Francia)<\/p>\n

11.20 h - 11.40 h<\/strong>\u00a0Nuevas terapias para la talasemia: Olivier Hermine (GR-Ex - Par\u00eds, Francia)<\/p>\n

11.40 h - 12.00 h<\/strong>\u00a0- Anemia falciforme - cobertura vacunal: Narcisse Elenga (Cayena, Guayana Francesa)<\/p>\n

12.00 - 12.15 h<\/strong>\u00a0- Debate<\/p>\n

12h15 - 13h35\u00a0<\/strong>- Comidas<\/p>\n

Diagn\u00f3stico y organizaci\u00f3n del DNN
\n<\/strong>Moderadores\u00a0<\/em>:\u00a0Marvin Reid y Marie-Dominique Hardy-Dessources\u00a0<\/em><\/p>\n

13.35 - 13.50 h<\/strong>\u00a0- Resumen de la experiencia en el Caribe no franc\u00f3fono: Monica Asnani (Kingston, Jamaica)<\/p>\n

\u00a0<\/strong>13.50 h - 14.05 h<\/strong>\u00a0- S\u00edntesis de la experiencia franc\u00f3fona y colaboraci\u00f3n con Tobago y Granada: Ketty Lee (Pointe-\u00e0-Pitre, Guadalupe, Francia)<\/p>\n

14.05 h - 14.25 h<\/strong>\u00a0- Nuevas estrategias de cribado: de las pruebas r\u00e1pidas a las plataformas de muy alto rendimiento: Jacques Elion (GR-Ex - Par\u00eds, Francia)<\/p>\n

14.25 h - 14.45 h<\/strong>\u00a0- Presentaciones orales seleccionadas<\/p>\n

\"Cribado neonatal en Cap Haitian, Hait\u00ed: presente y futuro\": Ofelia Alvarez (Miami, EE.UU.)<\/p>\n

\"Presencia de haplotipos no africanos en pacientes con drepanocitosis en Colombia, probablemente debido a la mezcla entre poblaciones amerindias, europeas y africanas\": Cristian Fong (Cali, Colombia)<\/p>\n

14.45 - 15.00 h<\/strong>\u00a0- Debate<\/p>\n

15.00 - 15.20 h<\/strong>\u00a0- Pausa<\/p>\n

Temas espec\u00edficos<\/strong>
\nModeradores\u00a0<\/em>:\u00a0B\u00e9reng\u00e8re Koehl y Gis\u00e8le Elana\u00a0<\/em><\/p>\n

15.20 h - 15.40 h<\/strong>\u00a0- Gesti\u00f3n de embarazos en mujeres con drepanocitosis en la Guayana Francesa: aspectos hist\u00f3ricos, adaptaci\u00f3n de la gesti\u00f3n: Gabriel Carles (Saint Laurent du Maroni, Guayana Francesa)<\/p>\n

15.40 h - 15.55 h<\/strong>\u00a0- Nuevos enfoques para el tratamiento del dolor: Maryse Etienne-Julan (Pointe-\u00e0-Pitre, Guadalupe, Francia)<\/p>\n

15.55 - 16.10 h<\/strong>\u00a0- Cin\u00e9tica antibi\u00f3tica en pacientes con anemia falciforme: B\u00e9reng\u00e8re Koehl (Par\u00eds, Francia)<\/p>\n

16.10 - 16.25 h<\/strong>\u00a0- Eco Doppler transcraneal: an\u00e1lisis a distancia, experiencia en la Rep\u00fablica Dominicana: Rosa Nieves (Santo-Domingo, Rep\u00fablica Dominicana)<\/p>\n

16.25 - 16.40 h<\/strong>\u00a0- El impacto de la drepanocitosis en la escuela: Corinne Pondarr\u00e9 (Cr\u00e9teil, Francia)<\/p>\n

16.40 - 16.50 h<\/strong>\u00a0- Presentaciones orales seleccionadas<\/p>\n

\"Implicaciones de un t\u00e1ndem pediatra-psic\u00f3logo en la atenci\u00f3n a la anemia falciforme e impacto en el funcionamiento cognitivo\": Adrienne Lerner (Par\u00eds, Francia)<\/p>\n

16.50 - 17.05 h\u00a0<\/strong>- Debate<\/p>\n

17.05 - 17.20 h<\/strong>\u00a0- Pausa<\/p>\n

17.20 h - 18.00 h<\/strong>\u00a0-\u00a0Mesa redonda\u00a0<\/strong>: Educaci\u00f3n terap\u00e9utica<\/p>\n

Anne Jolivet, Chantal Placide (CHOG - Guayana Francesa), Gylna Loko (EVAD - Lamentin, Martinica, Francia), Aliz\u00e9e Sterlin (ROFSED - Par\u00eds, Francia), Gis\u00e8le Elana (Pediatr\u00eda, Martinica, Francia), Lydia Divialle-Doumdo (UTD - Guadalupe, Francia).<\/p>\n

18.00 - 19.00 h<\/strong>\u00a0-\u00a0Comunicaciones dirigidas al p\u00fablico en general
\n<\/strong>Moderadores\u00a0<\/em>:\u00a0Edda Hadeed y Gylna Loko\u00a0<\/em><\/p>\n

Participaci\u00f3n de los pacientes como expertos en el dise\u00f1o de herramientas sanitarias m\u00f3viles para apoyar la autogesti\u00f3n de la anemia falciforme: David Issom (Ginebra, Suiza)<\/p>\n

Trasplante de c\u00e9lulas madre hematopoy\u00e9ticas: Jean-Hugues Dalle (Par\u00eds, Francia)<\/p>\n

Terapia g\u00e9nica: Emmanuel Payen (GR-Ex - Fontenay-aux-Roses, Francia)<\/p>\n

Viernes 26<\/strong><\/h3>\n

Terap\u00e9utica: Hidroxicarbamida
\n<\/strong>Moderadores\u00a0<\/em>:\u00a0Caroline Le Van Kim y Monika Asnani<\/em><\/p>\n

8.00 h - 8.20 h<\/strong>\u00a0- Experiencia americana: Dosis m\u00e1xima tolerada: Russell Ware (Cincinnati, EE.UU.)<\/p>\n

8h20 - 8h40<\/strong>\u00a0- Experiencia de la India: dosis fija baja: Dipty Jain (Nagpur, India)<\/p>\n

8h40 - 8h55<\/strong>\u00a0- Hidroxicarbamida y accidente cerebrovascular - Jamaica: Marvin Reid (Kingston, Jamaica)<\/p>\n

8h55 - 9h15<\/strong>\u00a0- Utilizaci\u00f3n de los datos HU-ESCORT para los departamentos y territorios franceses de ultramar :
\nHijos : Narcisse Elenga (Cayena, Guayana Francesa)
\nAdultos : Maryse Etienne-Julan (Pointe-\u00e0-Pitre, Guadalupe, Francia)<\/p>\n

\u00a09.15 h - 9.30 h<\/strong>\u00a0- Debate<\/p>\n

9h30 - 9h50 - Aplicaciones terap\u00e9uticas de la hepcidina: Sophie Vaulont (GR-Ex - Par\u00eds, Francia)<\/p>\n

9.50 - 10.20 h<\/strong>\u00a0Presentaciones orales seleccionadas:<\/p>\n

\"Hemoglobina fetal en la drepanocitosis: nuevos conocimientos sobre la expresi\u00f3n, la distribuci\u00f3n celular y el efecto de la hidroxicarbamida a nivel celular\": Sara El Hoss (CGRF-Par\u00eds, Francia)<\/p>\n

\"Identificaci\u00f3n de componentes de la v\u00eda del complejo mecanicista diana de la rapamicina 1 (mtorc1) como reguladores potenciales de la globina fetal\": Danitza M. N\u00e9bor (Bar Harbor, ME, EE.UU.)<\/p>\n

\"El tratamiento con hidroxiurea en la anemia falciforme induce cambios en las caracter\u00edsticas de las micropart\u00edculas y su impacto en el fenotipo de las c\u00e9lulas endoteliales\": Yohann Garnier (Pointe-\u00e0-Pitre, Guadalupe, Francia).<\/p>\n

10.20 h - 10.35 h<\/strong>\u00a0Debates<\/p>\n

10.35 h - 10.50 h\u00a0<\/strong>\u00a0Pausa<\/p>\n

Transfusi\u00f3n<\/strong>
\nModeradores\u00a0<\/em>:\u00a0Yves Colin Aronovicz y Rinaldo Villaescusa\u00a0<\/em><\/p>\n

10.50 - 11.10 h\u00a0<\/strong>- Riesgo infeccioso y transfusi\u00f3n: la experiencia brasile\u00f1a: Luiz Amorim (R\u00edo de Janeiro, Brasil)<\/p>\n

11.10 h - 11.25 h<\/strong>\u00a0- Lesiones por almacenamiento: \u00bfdeben transfundirse los hemat\u00edes j\u00f3venes? Caroline Le Van Kim (GR-Ex - Par\u00eds, Francia)<\/p>\n

11.25 h - 11.45 h<\/strong>\u00a0Adaptaci\u00f3n entre donantes, donaciones, circuitos y pacientes: un reto para la Guayana Francesa: Olivier Garraud (Par\u00eds, Francia)<\/p>\n

11.45 h - 12.00 h<\/strong>\u00a0- Debate<\/p>\n

12.00 - 12.40 h\u00a0<\/strong>-\u00a0Mesa redonda:\u00a0<\/strong>Donaci\u00f3n de sangre en Guayana Francesa
\nEl papel de la transfusi\u00f3n en el tratamiento de los pacientes con anemia falciforme: Lydia Divialle (Pointe-\u00e0-Pitre, Guadalupe, Francia)
\nDonaci\u00f3n de sangre en la Guayana Francesa: punto de vista de la EFS Antillas-Guyane: Fran\u00e7oise Maire (Cayena, Guayana Francesa, Francia)
\nDonaci\u00f3n de sangre en la Guayana Francesa: una perspectiva de la INTS: Olivier Garraud (Par\u00eds, Francia)<\/p>\n

12.40 h - 14.00 h<\/strong>\u00a0- Comidas<\/p>\n

Tratamientos curativos<\/strong>
\nModeradores\u00a0<\/em>:\u00a0Russell Ware y Maryse Etienne-Julan\u00a0<\/em><\/p>\n

14.00 h - 14.20 h<\/strong>\u00a0-\u00a0Trasplante de c\u00e9lulas madre hematopoy\u00e9ticas :\u00a0<\/strong><\/p>\n

Experiencia global: Jean-Hugues Dalle (Par\u00eds, Francia)<\/p>\n

14.20 - 15.00 h<\/strong>\u00a0Mesa redonda\u00a0<\/strong>Experiencia en los departamentos franceses de ultramar (G. Elana, Martinica), en Francia continental (J-H Dalle, Par\u00eds) y en Trinidad para pacientes talas\u00e9micos (Waveney Charles, Trinidad y Tobago).<\/p>\n

15.00 - 15.20 h<\/strong>\u00a0- Presentaciones orales seleccionadas<\/p>\n

\"El patr\u00f3n de escisi\u00f3n de BID dependiente de la case\u00edna quinasa-1a inducida por eritropoyetina determina el destino de los precursores eritroides\": Genevi\u00e8ve Courtois (Par\u00eds, Francia)<\/p>\n

\"Micropart\u00edculas celulares en la vasculopat\u00eda cr\u00f3nica de la drepanocitosis en el \u00c1frica subsahariana\": Abdoul Karim DEMBELE (CGRF-Par\u00eds, Francia)<\/p>\n

15.20 h - 15.30 h<\/strong>\u00a0- Debate<\/p>\n

15.30 - 15.45 h<\/strong>\u00a0-Break<\/p>\n

Arquitectura gen\u00e9tica y terapia g\u00e9nica de las hemoglobinopat\u00edas<\/strong>
\nModeradores\u00a0<\/em>:\u00a0Olivier Hermine y Marc Romana<\/em><\/p>\n

15.45 - 16.05 h<\/strong>\u00a0- Terapia g\u00e9nica de las hemoglobinopat\u00edas: Emmanuel Payen (GR-Ex - Fontenay-aux-Roses, Francia)<\/p>\n

16.05 - 16.25 h<\/strong>\u00a0Gen\u00e9tica, gen\u00f3mica y drepanocitosis: Laurent Gouya (GR-Ex, Par\u00eds, Francia)<\/p>\n

16.25 - 16.35 h<\/strong>\u00a0Debates<\/p>\n

16.35 - 17.30 h<\/strong>\u00a0Debate - Prioridad :\u00a0<\/strong>Curar la drepanocitosis frente a mejorar la asistencia<\/p>\n

16.35 - 16.55 h<\/strong>\u00a0Prioridad: curar la anemia falciforme: Marianne de Montalembert (Par\u00eds, Francia)<\/p>\n

16.55 - 17.15 h<\/strong>\u00a0- Prioridad: mejorar la atenci\u00f3n: Russell Ware (Cincinnati, EE.UU.)<\/p>\n

17.15 - 17.30 h<\/strong>\u00a0- Debate<\/p>\n

Sesi\u00f3n simult\u00e1nea dedicada a las asociaciones
\n<\/strong>Moderador: Vincent Vantilcke\u00a0<\/em><\/p>\n

8.00 - 9.35<\/strong>\u00a0- Presentaci\u00f3n de cada asociaci\u00f3n: objetivos, actividades,<\/p>\n

9.35 h - 10.35 h<\/strong>\u00a0Simulaci\u00f3n de una sesi\u00f3n de educaci\u00f3n terap\u00e9utica de pacientes a cargo de la ROFSED: Aliz\u00e9e Sterlin (Par\u00eds, Francia)<\/p>\n

10.35 h - 10.50 h<\/strong>\u00a0Pausa<\/p>\n

10.50 - 11.25 h<\/strong>\u00a0\"Terapia intensificada en la anemia falciforme: \u00bfdebe administrarse antes o despu\u00e9s de la aparici\u00f3n de complicaciones? Mariane de Montalembert (Par\u00eds, Francia)<\/p>\n

11.25 h - 12.15 h<\/strong>\u00a0- Debates sobre la anemia falciforme y las desigualdades sanitarias, dirigidos por psic\u00f3logos, trabajadores sociales y un funcionario del MDPH (centro departamental para discapacitados): Constance Leconte, Joelle Chandey, Josette Ponceau, Yol\u00e8ne Lutin Montina (Cayena, Guayana Francesa)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"La 5\u00aa Conferencia Caribe\u00f1a sobre Anemia Falciforme y Talasemia, organizada por CAREST y...","protected":false},"author":1,"featured_media":9394,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"iawp_total_views":32,"footnotes":""},"categories":[155,227,229],"tags":[],"class_list":{"0":"post-9392","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-recherche","8":"category-sante","9":"category-universite-actualites"},"yoast_head":"\n5\u00e8me Conf\u00e9rence Carib\u00e9enne sur la dr\u00e9panocytose et les Thalass\u00e9mies — Universit\u00e9 de Guyane<\/title>\n<meta name=\"description\" content=\"D\u00e9couvrez la conf\u00e9rence sur la dr\u00e9panocytose et les thalass\u00e9mies. 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