{"id":9392,"date":"2018-10-23T09:28:40","date_gmt":"2018-10-23T12:28:40","guid":{"rendered":"https:\/\/www.univ-guyane.fr\/?p=9392"},"modified":"2024-06-27T09:34:13","modified_gmt":"2024-06-27T12:34:13","slug":"5eme-conference-caribeenne-sur-la-drepanocytose-et-les-thalassemies","status":"publish","type":"post","link":"https:\/\/www.univ-guyane.fr\/nl\/2018\/10\/23\/5eme-conference-caribeenne-sur-la-drepanocytose-et-les-thalassemies\/","title":{"rendered":"5e Caribische Conferentie over sikkelcelziekte en thalassemie"},"content":{"rendered":"<div id=\"fws_6a0414ebb0752\"  data-column-margin=\"default\" data-midnight=\"dark\"  class=\"wpb_row vc_row-fluid vc_row\"  style=\"padding-top: 0px; padding-bottom: 0px; \"><div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\"><div class=\"inner-wrap row-bg-layer\" ><div class=\"row-bg viewport-desktop\"  style=\"\"><\/div><\/div><\/div><div class=\"row_col_wrap_12 col span_12 dark left\">\n\t<div  class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\"  data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\" >\n\t\t<div class=\"vc_column-inner\" >\n\t\t\t<div class=\"wpb_wrapper\">\n\t\t\t\t\n<div class=\"wpb_text_column wpb_content_element  chapo\" >\n\t<h2>De 5e Caribische Conferentie over sikkelcelziekte en thalassemie, georganiseerd door CAREST en GR-Ex, wordt gehouden van 24 tot 26 oktober 2018 aan de Universiteit van Guyana, voor een bijzondere tijd van uitwisseling tussen clinici, onderzoekers, vertegenwoordigers van pati\u00ebnten-familieverenigingen<\/h2>\n<\/div>\n\n\n\n\n<div class=\"wpb_text_column wpb_content_element\" >\n\t<div id=\"fws_653857dfb0c09\" class=\"wpb_row vc_row-fluid vc_row\" data-column-margin=\"default\" data-midnight=\"dark\">\n<div class=\"row_col_wrap_12 col span_12 dark left\">\n<div class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\" data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\">\n<div class=\"vc_column-inner\">\n<div class=\"wpb_wrapper\">\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<p>Het thema van dit jaar is \"Sikkelcelziekte en thalassemie: een update over behandeling en onderzoek\".<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<div id=\"fws_653857dfb0df4\" class=\"wpb_row vc_row-fluid vc_row\" data-column-margin=\"default\" data-midnight=\"dark\">\n<div class=\"row-bg-wrap\" data-bg-animation=\"none\" data-bg-animation-delay=\"\" data-bg-overlay=\"false\">\n<div class=\"inner-wrap row-bg-layer\">\n<div class=\"row-bg viewport-desktop\"><\/div>\n<\/div>\n<\/div>\n<div class=\"row_col_wrap_12 col span_12 dark left\">\n<div class=\"vc_col-sm-12 wpb_column column_container vc_column_container col no-extra-padding inherit_tablet inherit_phone\" data-padding-pos=\"all\" data-has-bg-color=\"false\" data-bg-color=\"\" data-bg-opacity=\"1\" data-animation=\"\" data-delay=\"0\">\n<div class=\"vc_column-inner\">\n<div class=\"wpb_wrapper\">\n<div class=\"wpb_text_column wpb_content_element\">\n<div class=\"wpb_wrapper\">\n<div id=\"lipsum\">\n<h3><strong>Woensdag 24<\/strong><\/h3>\n<p><strong>15.00 - 17.00 uur<\/strong>\u00a0<strong>Informatiebijeenkomst, debat\u00a0<\/strong>(publiek: laatstejaars leerlingen, studenten aan de Universiteit van Guyana)\u00a0<strong>:\u00a0<\/strong><\/p>\n<p>Wat is CAREST?<\/p>\n<p>Carri\u00e8re in onderzoek<\/p>\n<p>Internationale uitwisselingen en onderzoek Deelnemers: vertegenwoordigers van Inserm, de universiteiten van Parijs Diderot, Parijs Descartes, West-Indi\u00eb, S\u00e3o Paulo, Havana, Santo Domingo, de Federale Universiteit van Rio de Janeiro, Imperial College of London, de Universiteit van Guyana en de Guyana Scientific Interest Group.<\/p>\n<p><strong>19:00 - 20:00 uur<\/strong>\u00a0<strong>Openingsceremonie\u00a0<\/strong><\/p>\n<h3><strong>Donderdag 25<\/strong><\/h3>\n<p><strong>7.00 - 8.30<\/strong>\u00a0-\u00a0<em>Registratie\u00a0<\/em><\/p>\n<p><strong>Epidemiologie van rode bloedcelziekten<\/strong><br \/>\n<em>Moderators: Jacques Elion &amp; Narcisse Elenga\u00a0<\/em><\/p>\n<p><strong>8.30 - 8.50<\/strong>\u00a0- Wereldwijde epidemiologie van hemoglobinopathie\u00ebn: Fr\u00e9d\u00e9ric Piel (Londen, UK)<\/p>\n<p><strong>8.50 - 9.05<\/strong>\u00a0Focus op het Caribisch gebied: Marc Romana (Pointe-\u00e0-Pitre, Guadeloupe, Frankrijk)<\/p>\n<p><strong>9.05 - 9.25\u00a0<\/strong>\u00a0G6PD-defici\u00ebntie, update: Fr\u00e9d\u00e9ric Galact\u00e9ros (Cr\u00e9teil, Frankrijk)<\/p>\n<p><strong>9.25 - 9.45<\/strong>\u00a0- Epidemiologische overgang van sikkelcelziekte in West- en Centraal-Afrika: veranderingen in morbiditeit en mortaliteit in stedelijke gebieden: Brigitte Ranque (GR-Ex - Parijs, Frankrijk)<\/p>\n<p><strong>9.45 - 10.00<\/strong>Discussie<\/p>\n<p><strong>10.00 - 10.20 uur<\/strong>\u00a0Geselecteerde mondelinge presentaties<\/p>\n<p>\"Sikkelcelziekte in Venezuela verkeert momenteel in een crisis (Venezuela)\": Adriana Bello (Caracas, Venezuela)<\/p>\n<p>\"Cubaans programma voor de preventie van sikkelcelziekte. Vijfendertig jaar resultaten (Cuba)\": Beatriz Marcheco-Teruel (La Habana, Cuba)<\/p>\n<p><strong>10.20 - 10.35\u00a0<\/strong>Discussie<\/p>\n<p><strong>10.35 - 11.00 uur<\/strong>\u00a0Pauze<\/p>\n<p>Uitgebreide zorg: aanbevelingen\u00a0<em>Moderators\u00a0<\/em>:\u00a0<em>Mariane de Montalembert &amp; Ketty Lee\u00a0<\/em><\/p>\n<p><strong>11.00 - 11.20<\/strong>\u00a0Indicaties voor splenectomie bij membraanaandoeningen van rode bloedcellen: Lo\u00efc Gar\u00e7on (Amiens, Frankrijk)<\/p>\n<p><strong>11.20 - 11.40<\/strong>\u00a0Nieuwe thalassemietherapie\u00ebn: Olivier Hermine (GR-Ex - Parijs, Frankrijk)<\/p>\n<p><strong>11.40 - 12.00<\/strong>\u00a0- Sikkelcelziekte - vaccinatiegraad: Narcisse Elenga (Cayenne, Frans-Guyana)<\/p>\n<p><strong>12.00 - 12.15 uur<\/strong>\u00a0- Discussie<\/p>\n<p><strong>12.15 - 13.35\u00a0<\/strong>- Maaltijden<\/p>\n<p><strong>Diagnose en organisatie van het DNN<br \/>\n<\/strong><em>Moderators\u00a0<\/em>:\u00a0<em>Marvin Reid &amp; Marie-Dominique Hardy-Dessources\u00a0<\/em><\/p>\n<p><strong>13.35 - 13.50<\/strong>\u00a0- Samenvatting van ervaringen in de niet-Franstalige Cara\u00efben: Monica Asnani (Kingston, Jamaica)<\/p>\n<p><strong>\u00a0<\/strong><strong>13.50 - 14.05<\/strong>\u00a0- Synthese van Franstalige ervaringen en samenwerking met Tobago en Grenada: Ketty Lee (Pointe-\u00e0-Pitre, Guadeloupe, Frankrijk)<\/p>\n<p><strong>14.05 - 14.25<\/strong>\u00a0- Nieuwe screeningstrategie\u00ebn: van snelle tests tot zeer snelle platforms: Jacques Elion (GR-Ex - Parijs, Frankrijk)<\/p>\n<p><strong>14.25 - 14.45<\/strong>\u00a0- Geselecteerde mondelinge presentaties<\/p>\n<p>\"Screening bij pasgeborenen in Cap Haitian, Ha\u00efti: heden en toekomst\": Ofelia Alvarez (Miami, VS)<\/p>\n<p>\"Aanwezigheid van niet-Afrikaanse haplotypes bij sikkelcelpati\u00ebnten in Colombia waarschijnlijk door vermenging met amerindiaanse, europese en afrikaanse populaties\": Cristian Fong (Cali, Colombia)<\/p>\n<p><strong>14.45 - 15.00 uur<\/strong>\u00a0- Discussie<\/p>\n<p><strong>15.00 - 15.20<\/strong>\u00a0- Pauze<\/p>\n<p><strong>Specifieke thema's<\/strong><br \/>\n<em>Moderators\u00a0<\/em>:\u00a0<em>B\u00e9reng\u00e8re Koehl &amp; Gis\u00e8le Elana\u00a0<\/em><\/p>\n<p><strong>15.20 - 15.40<\/strong>\u00a0- Zwangerschapsmanagement bij vrouwen met sikkelcelziekte in Frans Guyana: historische aspecten, aanpassing van management: Gabriel Carles (Saint Laurent du Maroni, Frans Guyana)<\/p>\n<p><strong>15.40 - 15.55<\/strong>\u00a0- Nieuwe benaderingen van pijnbehandeling: Maryse Etienne-Julan (Pointe-\u00e0-Pitre, Guadeloupe, Frankrijk)<\/p>\n<p><strong>15.55 - 16.10<\/strong>\u00a0- Kinetiek van antibiotica bij pati\u00ebnten met sikkelcelziekte: B\u00e9reng\u00e8re Koehl (Parijs, Frankrijk)<\/p>\n<p><strong>16.10 - 16.25<\/strong>\u00a0- Transcrani\u00eble Doppler-echo: analyse op afstand, ervaring in de Dominicaanse Republiek: Rosa Nieves (Santo-Domingo, Dominicaanse Republiek)<\/p>\n<p><strong>16.25 - 16.40<\/strong>\u00a0- De impact van sikkelcelziekte op school: Corinne Pondarr\u00e9 (Cr\u00e9teil, Frankrijk)<\/p>\n<p><strong>16.40 - 16.50<\/strong>\u00a0- Geselecteerde mondelinge presentaties<\/p>\n<p>\"Implicaties van een tandem kinderarts-psycholoog voor zorg bij sikkelcelziekte en impact op cognitief functioneren\": Adrienne Lerner (Parijs, Frankrijk)<\/p>\n<p><strong>16.50 - 17.05\u00a0<\/strong>- Discussie<\/p>\n<p><strong>17.05 - 17.20<\/strong>\u00a0- Pauze<\/p>\n<p><strong>17.20 - 18.00<\/strong>\u00a0-\u00a0<strong>Ronde tafel\u00a0<\/strong>Therapeutisch onderwijs<\/p>\n<p>Anne Jolivet, Chantal Placide (CHOG - Frans-Guyana), Gylna Loko (EVAD - Lamentin, Martinique, Frankrijk), Aliz\u00e9e Sterlin (ROFSED - Parijs, Frankrijk), Gis\u00e8le Elana (Kindergeneeskunde, Martinique, Frankrijk), Lydia Divialle-Doumdo (UTD - Guadeloupe, Frankrijk).<\/p>\n<p><strong>18.00 - 19.00 uur<\/strong>\u00a0-\u00a0<strong>Communicatie gericht op het grote publiek<br \/>\n<\/strong><em>Moderators\u00a0<\/em>:\u00a0<em>Edda Hadeed &amp; Gylna Loko\u00a0<\/em><\/p>\n<p>Pati\u00ebnten als experts betrekken bij het ontwerp van mobiele gezondheidstools ter ondersteuning van zelfmanagement bij sikkelcelziekte: David Issom (Gen\u00e8ve, Zwitserland)<\/p>\n<p>Hematopo\u00ebtische stamceltransplantatie: Jean-Hugues Dalle (Parijs, Frankrijk)<\/p>\n<p>Gentherapie: Emmanuel Payen (GR-Ex - Fontenay-aux-Roses, Frankrijk)<\/p>\n<h3><strong>Vrijdag 26<\/strong><\/h3>\n<p><strong>Therapeutica : Hydroxycarbamide<br \/>\n<\/strong><em>Moderators\u00a0<\/em>:\u00a0<em>Caroline Le Van Kim &amp; Monika Asnani<\/em><\/p>\n<p><strong>8.00 - 8.20<\/strong>\u00a0- Amerikaanse ervaring: Maximaal getolereerde dosis: Russell Ware (Cincinnati, VS)<\/p>\n<p><strong>8.20 - 8.40<\/strong>\u00a0- Ervaring uit India: lage vaste dosis: Dipty Jain (Nagpur, India)<\/p>\n<p><strong>8.40 - 8.55<\/strong>\u00a0- Hydroxycarbamide en beroerte - Jamaica: Marvin Reid (Kingston, Jamaica)<\/p>\n<p><strong>8.55 - 9.15<\/strong>\u00a0- Gebruik van HU-ESCORT gegevens voor de Franse overzeese departementen en gebiedsdelen :<br \/>\nKinderen : Narcisse Elenga (Cayenne, Frans Guyana)<br \/>\nVolwassenen : Maryse Etienne-Julan (Pointe-\u00e0-Pitre, Guadeloupe, Frankrijk)<\/p>\n<p><strong>\u00a09.15 - 9.30<\/strong>\u00a0- Discussie<\/p>\n<p>9u30 - 9u50 - Therapeutische toepassingen van hepcidine: Sophie Vaulont (GR-Ex - Parijs, Frankrijk)<\/p>\n<p><strong>9.50 - 10.20<\/strong>\u00a0Geselecteerde mondelinge presentaties:<\/p>\n<p>\"Foetaal hemoglobine bij sikkelcelziekte: nieuwe inzichten in de expressie, cellulaire distributie en het effect van hydroxycarbamide op cellulair niveau\": Sara El Hoss (CGRF-Parijs, Frankrijk)<\/p>\n<p>\"Identificatie van componenten van de mechanistische doelwit van rapamycine complex 1 (mtorc1) pathway als potenti\u00eble regulatoren van foetaal globine\": Danitza M. N\u00e9bor (Bar Harbor, ME, VS)<\/p>\n<p>\"Hydroxyureabehandeling bij sikkelcelanemie induceert veranderingen in de eigenschappen van microdeeltjes en hun impact op het fenotype van endotheelcellen\": Yohann Garnier (Pointe-\u00e0-Pitre, Guadeloupe, Frankrijk)<\/p>\n<p><strong>10.20 - 10.35<\/strong>\u00a0Discussies<\/p>\n<p><strong>10.35 - 10.50\u00a0<\/strong>\u00a0Pauze<\/p>\n<p><strong>Transfusie<\/strong><br \/>\n<em>Moderators\u00a0<\/em>:\u00a0<em>Yves Colin Aronovicz &amp; Rinaldo Villaescusa\u00a0<\/em><\/p>\n<p><strong>10.50 - 11.10\u00a0<\/strong>- Infectierisico en transfusie: de Braziliaanse ervaring: Luiz Amorim (Rio de Janeiro, Brazili\u00eb)<\/p>\n<p><strong>11.10 uur - 11.25 uur<\/strong>\u00a0- Opslagletsels: moeten jonge verpakte rode bloedcellen worden getransfundeerd? Caroline Le Van Kim (GR-Ex - Parijs, Frankrijk)<\/p>\n<p><strong>11.25 - 11.45<\/strong>\u00a0Aanpassing tussen donoren, donaties, circuits en pati\u00ebnten: een uitdaging voor Frans-Guyana: Olivier Garraud (Parijs, Frankrijk)<\/p>\n<p><strong>11.45 - 12.00<\/strong>\u00a0- Discussie<\/p>\n<p><strong>12.00 - 12.40 uur\u00a0<\/strong>-\u00a0<strong>Ronde tafel:\u00a0<\/strong>Bloeddonatie in Frans-Guyana<br \/>\nDe rol van transfusie bij de behandeling van pati\u00ebnten met sikkelcelziekte: Lydia Divialle (Pointe-\u00e0-Pitre, Guadeloupe, Frankrijk)<br \/>\nBloeddonatie in Guyana: standpunt van de EFS Antillen-Guyane: Fran\u00e7oise Maire (Cayenne, Guyana, Frankrijk)<br \/>\nBloeddonatie in Frans-Guyana: een INTS-perspectief: Olivier Garraud (Parijs, Frankrijk)<\/p>\n<p><strong>12.40 - 14.00<\/strong>\u00a0- Maaltijden<\/p>\n<p><strong>Curatieve behandelingen<\/strong><br \/>\n<em>Moderators\u00a0<\/em>:\u00a0<em>Russell Ware &amp; Maryse Etienne-Julan\u00a0<\/em><\/p>\n<p><strong>14.00 - 14.20<\/strong>\u00a0-\u00a0<strong>Transplantatie van hematopo\u00ebtische stamcellen :\u00a0<\/strong><\/p>\n<p>Ervaring wereldwijd: Jean-Hugues Dalle (Parijs, Frankrijk)<\/p>\n<p><strong>14.20 - 15.00<\/strong>\u00a0<strong>Ronde tafel\u00a0<\/strong>Ervaring in de Franse overzeese departementen (G. Elana, Martinique), in continentaal Frankrijk (J-H Dalle, Parijs) en in Trinidad voor thalassemische pati\u00ebnten (Waveney Charles, Trinidad en Tobago).<\/p>\n<p><strong>15.00 - 15.20<\/strong>\u00a0- Geselecteerde mondelinge presentaties<\/p>\n<p>\"BID-splitsingspatroon afhankelijk van erytropo\u00ebtine-ge\u00efnduceerd case\u00efnekinase-1a bepaalt het lot van erytro\u00efde voorlopers\": Genevi\u00e8ve Courtois (Parijs, Frankrijk)<\/p>\n<p>\"Cell-derived microparticles in sickle cell disease chronic vasculopathy in sub-Saharan Africa\": Abdoul Karim DEMBELE (CGRF-Parijs, Frankrijk)<\/p>\n<p><strong>15.20 - 15.30<\/strong>\u00a0- Discussie<\/p>\n<p><strong>15.30 - 15.45 uur<\/strong>\u00a0-Break<\/p>\n<p><strong>Genetische architectuur en gentherapie voor hemoglobinopathie\u00ebn<\/strong><br \/>\n<em>Moderators\u00a0<\/em>:\u00a0<em>Olivier Hermine &amp; Marc Romana<\/em><\/p>\n<p><strong>15.45 - 16.05<\/strong>\u00a0- Gentherapie voor hemoglobinopathie\u00ebn: Emmanuel Payen (GR-Ex - Fontenay-aux-Roses, Frankrijk)<\/p>\n<p><strong>16.05 - 16.25<\/strong>\u00a0Genetica, genomica en sikkelcelziekte: Laurent Gouya (GR-Ex, Parijs, Frankrijk)<\/p>\n<p><strong>16.25 - 16.35<\/strong>\u00a0Discussies<\/p>\n<p><strong>16.35 - 17.30<\/strong>\u00a0<strong>Debat - Prioriteit :\u00a0<\/strong>Sikkelcelziekte genezen versus zorg verbeteren<\/p>\n<p><strong>16.35 - 16.55<\/strong>\u00a0Prioriteit: genezing van sikkelcelanemie: Marianne de Montalembert (Parijs, Frankrijk)<\/p>\n<p><strong>16.55 - 17.15<\/strong>\u00a0- Prioriteit: zorg verbeteren: Russell Ware (Cincinnati, VS)<\/p>\n<p><strong>17.15 - 17.30<\/strong>\u00a0- Discussie<\/p>\n<p><strong>Gelijktijdige sessie gewijd aan verenigingen<br \/>\n<\/strong><em>Moderator: Vincent Vantilcke\u00a0<\/em><\/p>\n<p><strong>8.00 - 9.35<\/strong>\u00a0- Presentatie van elke vereniging: doelstellingen, activiteiten,<\/p>\n<p><strong>9.35 - 10.35<\/strong>\u00a0Simulatie van een therapeutische educatiesessie voor pati\u00ebnten uitgevoerd door de ROFSED: Aliz\u00e9e Sterlin (Parijs, Frankrijk)<\/p>\n<p><strong>10.35 - 10.50<\/strong>\u00a0Pauze<\/p>\n<p><strong>10.50 - 11.25<\/strong>\u00a0\"Intensieve therapie bij sikkelcelziekte: moet het worden toegediend voor of na het optreden van complicaties? Mariane de Montalembert (Parijs, Frankrijk)<\/p>\n<p><strong>11.25 - 12.15 uur.<\/strong>\u00a0- Discussies over sikkelcelanemie en ongelijkheden op gezondheidsgebied, geleid door psychologen, maatschappelijk werkers en een ambtenaar van het MDPH (departementaal centrum voor gehandicapten): Constance Leconte, Joelle Chandey, Josette Ponceau, Yol\u00e8ne Lutin Montina (Cayenne, Frans Guyana)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"De 5e Caribische Conferentie over sikkelcelziekte en thalassemie, georganiseerd door CAREST en...","protected":false},"author":1,"featured_media":9394,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"iawp_total_views":32,"footnotes":""},"categories":[155,227,229],"tags":[],"class_list":{"0":"post-9392","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-recherche","8":"category-sante","9":"category-universite-actualites"},"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.6 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>5\u00e8me Conf\u00e9rence Carib\u00e9enne sur la dr\u00e9panocytose et les Thalass\u00e9mies &#8212; Universit\u00e9 de Guyane<\/title>\n<meta name=\"description\" content=\"D\u00e9couvrez la conf\u00e9rence sur la dr\u00e9panocytose et les thalass\u00e9mies. 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