{"id":9392,"date":"2018-10-23T09:28:40","date_gmt":"2018-10-23T12:28:40","guid":{"rendered":"https:\/\/www.univ-guyane.fr\/?p=9392"},"modified":"2024-06-27T09:34:13","modified_gmt":"2024-06-27T12:34:13","slug":"5eme-conference-caribeenne-sur-la-drepanocytose-et-les-thalassemies","status":"publish","type":"post","link":"https:\/\/www.univ-guyane.fr\/pt\/2018\/10\/23\/5eme-conference-caribeenne-sur-la-drepanocytose-et-les-thalassemies\/","title":{"rendered":"5\u00aa Confer\u00eancia do Caribe sobre Doen\u00e7a Falciforme e Talassemia"},"content":{"rendered":"
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A 5\u00aa Confer\u00eancia do Caribe sobre Doen\u00e7a Falciforme e Talassemia, organizada pela CAREST e GR-Ex, ser\u00e1 realizada de 24 a 26 de outubro de 2018 na Universidade da Guiana, para um momento especial de interc\u00e2mbio entre cl\u00ednicos, pesquisadores, representantes de associa\u00e7\u00f5es de pacientes e familiares<\/h2>\n<\/div>\n\n\n\n\n
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O tema deste ano \u00e9 \"Doen\u00e7a falciforme e talassemia: uma atualiza\u00e7\u00e3o sobre tratamento e pesquisa\".<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n

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Quarta-feira, dia 24<\/strong><\/h3>\n

Das 15h \u00e0s 17h<\/strong>\u00a0Reuni\u00e3o informativa, debate\u00a0<\/strong>(p\u00fablico: alunos do \u00faltimo ano, estudantes da Universidade da Guiana)\u00a0:\u00a0<\/strong><\/p>\n

O que \u00e9 o CAREST?<\/p>\n

Carreiras de pesquisa<\/p>\n

Interc\u00e2mbios internacionais e pesquisa Participantes: representantes do Inserm, das universidades de Paris Diderot, Paris Descartes, West Indies, S\u00e3o Paulo, Havana, Santo Domingo, da Universidade Federal do Rio de Janeiro, do Imperial College de Londres, da Universidade da Guiana e do Grupo de Interesse Cient\u00edfico da Guiana.<\/p>\n

7.00-8.00 p.m. -<\/strong>\u00a0Cerim\u00f4nia de abertura\u00a0<\/strong><\/p>\n

Quinta-feira, dia 25<\/strong><\/h3>\n

7h00 - 8h30<\/strong>\u00a0-\u00a0Registro\u00a0<\/em><\/p>\n

Epidemiologia das doen\u00e7as dos gl\u00f3bulos vermelhos<\/strong>
\nModeradores: Jacques Elion e Narcisse Elenga\u00a0<\/em><\/p>\n

8h30 - 8h50<\/strong>\u00a0- Epidemiologia global das hemoglobinopatias: Fr\u00e9d\u00e9ric Piel (Londres, Reino Unido)<\/p>\n

Das 8h50 \u00e0s 9h05<\/strong>\u00a0Foco no Caribe: Marc Romana (Pointe-\u00e0-Pitre, Guadalupe, Fran\u00e7a)<\/p>\n

9h05 - 9h25\u00a0<\/strong>\u00a0Defici\u00eancia de G6PD, atualiza\u00e7\u00e3o: Fr\u00e9d\u00e9ric Galact\u00e9ros (Cr\u00e9teil, Fran\u00e7a)<\/p>\n

9h25 - 9h45<\/strong>\u00a0- Transi\u00e7\u00e3o epidemiol\u00f3gica da doen\u00e7a falciforme na \u00c1frica Ocidental e Central: mudan\u00e7as na morbidade e mortalidade em \u00e1reas urbanas: Brigitte Ranque (GR-Ex - Paris, Fran\u00e7a)<\/p>\n

9h45 - 10h00<\/strong>Discuss\u00e3o<\/p>\n

10h00 - 10h20<\/strong>\u00a0Apresenta\u00e7\u00f5es orais selecionadas<\/p>\n

\"A doen\u00e7a falciforme na Venezuela est\u00e1 atualmente em crise (Venezuela)\": Adriana Bello (Caracas, Venezuela)<\/p>\n

\"Programa Cubano de Preven\u00e7\u00e3o da Doen\u00e7a Falciforme. Resultados de trinta e cinco anos (Cuba)\": Beatriz Marcheco-Teruel (La Habana, Cuba)<\/p>\n

10h20 - 10h35\u00a0<\/strong>Discuss\u00e3o<\/p>\n

10h35 - 11h00<\/strong>\u00a0Intervalo<\/p>\n

Cuidados abrangentes: recomenda\u00e7\u00f5es\u00a0Moderadores\u00a0<\/em>:\u00a0Mariane de Montalembert e Ketty Lee\u00a0<\/em><\/p>\n

11h00 - 11h20<\/strong>\u00a0Indica\u00e7\u00f5es para esplenectomia em dist\u00farbios da membrana dos gl\u00f3bulos vermelhos: Lo\u00efc Gar\u00e7on (Amiens, Fran\u00e7a)<\/p>\n

11h20 - 11h40<\/strong>\u00a0Novas terapias para a talassemia: Olivier Hermine (GR-Ex - Paris, Fran\u00e7a)<\/p>\n

11h40 - 12h00<\/strong>\u00a0- Doen\u00e7a falciforme - cobertura vacinal: Narcisse Elenga (Caiena, Guiana Francesa)<\/p>\n

12h00 - 12h15<\/strong>\u00a0- Discuss\u00e3o<\/p>\n

12h15min - 13h35min\u00a0<\/strong>- Refei\u00e7\u00f5es<\/p>\n

Diagn\u00f3stico e organiza\u00e7\u00e3o da DNN
\n<\/strong>Moderadores\u00a0<\/em>:\u00a0Marvin Reid e Marie-Dominique Hardy-Dessources\u00a0<\/em><\/p>\n

13h35 - 13h50<\/strong>\u00a0- Resumo da experi\u00eancia no Caribe de l\u00edngua n\u00e3o francesa: Monica Asnani (Kingston, Jamaica)<\/p>\n

\u00a0<\/strong>13h50min - 14h05min<\/strong>\u00a0- S\u00edntese da experi\u00eancia franc\u00f3fona e colabora\u00e7\u00e3o com Tobago e Granada: Ketty Lee (Pointe-\u00e0-Pitre, Guadalupe, Fran\u00e7a)<\/p>\n

14h05min - 14h25min<\/strong>\u00a0- Novas estrat\u00e9gias de triagem: de testes r\u00e1pidos a plataformas de alt\u00edssimo rendimento: Jacques Elion (GR-Ex - Paris, Fran\u00e7a)<\/p>\n

14h25 - 14h45<\/strong>\u00a0- Apresenta\u00e7\u00f5es orais selecionadas<\/p>\n

\"Triagem neonatal em Cap Haitian, Haiti: presente e futuro\": Ofelia Alvarez (Miami, EUA)<\/p>\n

\"Presen\u00e7a de hapl\u00f3tipos n\u00e3o africanos em pacientes com anemia falciforme na Col\u00f4mbia, provavelmente devido \u00e0 mistura entre popula\u00e7\u00f5es amer\u00edndias, europ\u00e9ias e africanas\": Cristian Fong (Cali, Col\u00f4mbia)<\/p>\n

14h45 - 15h<\/strong>\u00a0- Discuss\u00e3o<\/p>\n

15h00min - 15h20min<\/strong>\u00a0- Pausa<\/p>\n

Temas espec\u00edficos<\/strong>
\nModeradores\u00a0<\/em>:\u00a0B\u00e9reng\u00e8re Koehl e Gis\u00e8le Elana\u00a0<\/em><\/p>\n

15h20min - 15h40min<\/strong>\u00a0- Gerenciamento de gesta\u00e7\u00f5es em mulheres com doen\u00e7a falciforme na Guiana Francesa: aspectos hist\u00f3ricos, adapta\u00e7\u00e3o do gerenciamento: Gabriel Carles (Saint Laurent du Maroni, Guiana Francesa)<\/p>\n

15h40min - 15h55min<\/strong>\u00a0- Novas abordagens para o tratamento da dor: Maryse Etienne-Julan (Pointe-\u00e0-Pitre, Guadalupe, Fran\u00e7a)<\/p>\n

15h55 - 16h10<\/strong>\u00a0- Cin\u00e9tica de antibi\u00f3ticos em pacientes com doen\u00e7a falciforme: B\u00e9reng\u00e8re Koehl (Paris, Fran\u00e7a)<\/p>\n

16h10 - 16h25<\/strong>\u00a0- Eco Doppler transcraniano: an\u00e1lise remota, experi\u00eancia na Rep\u00fablica Dominicana: Rosa Nieves (Santo-Domingo, Rep\u00fablica Dominicana)<\/p>\n

16h25min - 16h40min<\/strong>\u00a0- O impacto da doen\u00e7a falciforme na escola: Corinne Pondarr\u00e9 (Cr\u00e9teil, Fran\u00e7a)<\/p>\n

16h40min - 16h50min<\/strong>\u00a0- Apresenta\u00e7\u00f5es orais selecionadas<\/p>\n

\"Implica\u00e7\u00f5es de um tandem pediatra-psic\u00f3logo para o tratamento da doen\u00e7a falciforme e o impacto no funcionamento cognitivo\": Adrienne Lerner (Paris, Fran\u00e7a)<\/p>\n

16h50 - 17h05\u00a0<\/strong>- Discuss\u00e3o<\/p>\n

17h05 - 17h20<\/strong>\u00a0- Pausa<\/p>\n

17h20 - 18h00<\/strong>\u00a0-\u00a0Mesa redonda\u00a0<\/strong>Educa\u00e7\u00e3o terap\u00eautica<\/p>\n

Anne Jolivet, Chantal Placide (CHOG - Guiana Francesa), Gylna Loko (EVAD - Lamentin, Martinica, Fran\u00e7a), Aliz\u00e9e Sterlin (ROFSED - Paris, Fran\u00e7a), Gis\u00e8le Elana (Pediatria, Martinica, Fran\u00e7a), Lydia Divialle-Doumdo (UTD - Guadalupe, Fran\u00e7a)<\/p>\n

18:00 h - 19:00 h<\/strong>\u00a0-\u00a0Comunica\u00e7\u00f5es destinadas ao p\u00fablico em geral
\n<\/strong>Moderadores\u00a0<\/em>:\u00a0Edda Hadeed e Gylna Loko\u00a0<\/em><\/p>\n

Envolvimento de pacientes como especialistas na cria\u00e7\u00e3o de ferramentas de sa\u00fade m\u00f3vel para apoiar o autogerenciamento da doen\u00e7a falciforme: David Issom (Genebra, Su\u00ed\u00e7a)<\/p>\n

Transplante de c\u00e9lulas-tronco hematopoi\u00e9ticas: Jean-Hugues Dalle (Paris, Fran\u00e7a)<\/p>\n

Terapia g\u00eanica: Emmanuel Payen (GR-Ex - Fontenay-aux-Roses, Fran\u00e7a)<\/p>\n

Sexta-feira, dia 26<\/strong><\/h3>\n

Terap\u00eautica: Hidroxicarbamida
\n<\/strong>Moderadores\u00a0<\/em>:\u00a0Caroline Le Van Kim e Monika Asnani<\/em><\/p>\n

8h00 - 8h20<\/strong>\u00a0- Experi\u00eancia americana: Dose m\u00e1xima tolerada: Russell Ware (Cincinnati, EUA)<\/p>\n

Das 8h20 \u00e0s 8h40<\/strong>\u00a0- Experi\u00eancia da \u00cdndia: dose fixa baixa: Dipty Jain (Nagpur, \u00cdndia)<\/p>\n

Das 8h40 \u00e0s 8h55<\/strong>\u00a0- Hidroxicarbamida e acidente vascular cerebral - Jamaica: Marvin Reid (Kingston, Jamaica)<\/p>\n

Das 8h55 \u00e0s 9h15<\/strong>\u00a0- Uso dos dados do HU-ESCORT para os departamentos e territ\u00f3rios ultramarinos franceses:
\nFilhos : Narcisse Elenga (Caiena, Guiana Francesa)
\nAdultos : Maryse Etienne-Julan (Pointe-\u00e0-Pitre, Guadalupe, Fran\u00e7a)<\/p>\n

\u00a09h15 - 9h30<\/strong>\u00a0- Discuss\u00e3o<\/p>\n

9h30 - 9h50 - Aplica\u00e7\u00f5es terap\u00eauticas da hepcidina: Sophie Vaulont (GR-Ex - Paris, Fran\u00e7a)<\/p>\n

9h50 - 10h20<\/strong>\u00a0Apresenta\u00e7\u00f5es orais selecionadas:<\/p>\n

\"Hemoglobina fetal na doen\u00e7a falciforme: novas percep\u00e7\u00f5es sobre a express\u00e3o, a distribui\u00e7\u00e3o celular e o efeito da hidroxicarbamida em n\u00edvel celular\": Sara El Hoss (CGRF-Paris, Fran\u00e7a)<\/p>\n

\"Identifica\u00e7\u00e3o de componentes do alvo mecanicista da via do complexo 1 da rapamicina (mtorc1) como poss\u00edveis reguladores da globina fetal\": Danitza M. N\u00e9bor (Bar Harbor, ME, EUA)<\/p>\n

\"Hydroxyurea treatment in sickle cell anemia induces changes in microparticles characteristics and their impact on endothelial cell phenotype\": Yohann Garnier (Pointe-\u00e0-Pitre, Guadeloupe, Fran\u00e7a)<\/p>\n

10h20 - 10h35<\/strong>\u00a0Discuss\u00f5es<\/p>\n

10h35 - 10h50\u00a0<\/strong>\u00a0Intervalo<\/p>\n

Transfus\u00e3o<\/strong>
\nModeradores\u00a0<\/em>:\u00a0Yves Colin Aronovicz e Rinaldo Villaescusa\u00a0<\/em><\/p>\n

10h50 - 11h10\u00a0<\/strong>- Risco infeccioso e transfus\u00e3o: a experi\u00eancia brasileira: Luiz Amorim (Rio de Janeiro, Brasil)<\/p>\n

11h10 - 11h25<\/strong>\u00a0- Les\u00f5es de armazenamento: os concentrados de hem\u00e1cias jovens devem ser transfundidos? Caroline Le Van Kim (GR-Ex - Paris, Fran\u00e7a)<\/p>\n

11h25 - 11h45<\/strong>\u00a0Adapta\u00e7\u00e3o entre doadores, doa\u00e7\u00f5es, circuitos e pacientes: um desafio para a Guiana Francesa: Olivier Garraud (Paris, Fran\u00e7a)<\/p>\n

11h45 - 12h00<\/strong>\u00a0- Discuss\u00e3o<\/p>\n

12h00 - 12h40\u00a0<\/strong>-\u00a0Mesa redonda:\u00a0<\/strong>Doa\u00e7\u00e3o de sangue na Guiana Francesa
\nO papel da transfus\u00e3o no tratamento de pacientes com doen\u00e7a falciforme: Lydia Divialle (Pointe-\u00e0-Pitre, Guadalupe, Fran\u00e7a)
\nDoa\u00e7\u00e3o de sangue na Guiana Francesa: ponto de vista da EFS Antilles-Guyane: Fran\u00e7oise Maire (Cayenne, Guiana Francesa, Fran\u00e7a)
\nDoa\u00e7\u00e3o de sangue na Guiana Francesa: uma perspectiva do INTS: Olivier Garraud (Paris, Fran\u00e7a)<\/p>\n

12h40 - 14h00<\/strong>\u00a0- Refei\u00e7\u00f5es<\/p>\n

Tratamentos curativos<\/strong>
\nModeradores\u00a0<\/em>:\u00a0Russell Ware e Maryse Etienne-Julan\u00a0<\/em><\/p>\n

14h00min - 14h20min<\/strong>\u00a0-\u00a0Transplante de c\u00e9lulas-tronco hematopoi\u00e9ticas:\u00a0<\/strong><\/p>\n

Experi\u00eancia global: Jean-Hugues Dalle (Paris, Fran\u00e7a)<\/p>\n

14h20 - 15h00<\/strong>\u00a0Mesa redonda\u00a0<\/strong>Experi\u00eancia nos departamentos franceses ultramarinos (G. Elana, Martinica), na Fran\u00e7a continental (J-H Dalle, Paris) e em Trinidad para pacientes talass\u00eamicos (Waveney Charles, Trinidad e Tobago).<\/p>\n

15h00min - 15h20min<\/strong>\u00a0- Apresenta\u00e7\u00f5es orais selecionadas<\/p>\n

\"O padr\u00e3o de clivagem do BID dependente da case\u00edna quinase-1a induzida pela eritropoietina determina o destino dos precursores eritroides\": Genevi\u00e8ve Courtois (Paris, Fran\u00e7a)<\/p>\n

\"Micropart\u00edculas derivadas de c\u00e9lulas na vasculopatia cr\u00f4nica da doen\u00e7a falciforme na \u00c1frica subsaariana\": Abdoul Karim DEMBELE (CGRF-Paris, Fran\u00e7a)<\/p>\n

15h20min - 15h30min<\/strong>\u00a0- Discuss\u00e3o<\/p>\n

15h30min - 15h45min<\/strong>\u00a0-Break<\/p>\n

Arquitetura gen\u00e9tica e terapia g\u00eanica para hemoglobinopatias<\/strong>
\nModeradores\u00a0<\/em>:\u00a0Olivier Hermine e Marc Romana<\/em><\/p>\n

15h45min - 16h05min<\/strong>\u00a0- Terapia g\u00eanica para hemoglobinopatias: Emmanuel Payen (GR-Ex - Fontenay-aux-Roses, Fran\u00e7a)<\/p>\n

16h05min - 16h25min<\/strong>\u00a0Gen\u00e9tica, gen\u00f4mica e doen\u00e7a falciforme: Laurent Gouya (GR-Ex, Paris, Fran\u00e7a)<\/p>\n

16h25min - 16h35min<\/strong>\u00a0Discuss\u00f5es<\/p>\n

16h35 - 17h30<\/strong>\u00a0Debate - Prioridade :\u00a0<\/strong>Curar a doen\u00e7a falciforme versus melhorar o atendimento<\/p>\n

16h35min - 16h55min<\/strong>\u00a0Prioridade: cura da anemia falciforme: Marianne de Montalembert (Paris, Fran\u00e7a)<\/p>\n

16h55 - 17h15<\/strong>\u00a0- Prioridade: melhorar o atendimento: Russell Ware (Cincinnati, EUA)<\/p>\n

17h15 - 17h30<\/strong>\u00a0- Discuss\u00e3o<\/p>\n

Sess\u00e3o simult\u00e2nea dedicada \u00e0s associa\u00e7\u00f5es
\n<\/strong>Moderador: Vincent Vantilcke\u00a0<\/em><\/p>\n

8h00 - 9h35<\/strong>\u00a0- Apresenta\u00e7\u00e3o de cada associa\u00e7\u00e3o: objetivos, atividades,<\/p>\n

9h35 - 10h35<\/strong>\u00a0Simula\u00e7\u00e3o de uma sess\u00e3o de educa\u00e7\u00e3o terap\u00eautica para pacientes realizada pelo ROFSED: Aliz\u00e9e Sterlin (Paris, Fran\u00e7a)<\/p>\n

10h35 - 10h50<\/strong>\u00a0Intervalo<\/p>\n

10h50 - 11h25<\/strong>\u00a0\"Terapia intensificada na doen\u00e7a falciforme: deve ser administrada antes ou depois do in\u00edcio das complica\u00e7\u00f5es? Mariane de Montalembert (Paris, Fran\u00e7a)<\/p>\n

11h25 - 12h15<\/strong>\u00a0- Discuss\u00f5es sobre anemia falciforme e desigualdades na sa\u00fade, conduzidas por psic\u00f3logos, assistentes sociais e um funcion\u00e1rio do MDPH (centro departamental para deficientes): Constance Leconte, Joelle Chandey, Josette Ponceau, Yol\u00e8ne Lutin Montina (Caiena, Guiana Francesa)<\/p>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n<\/div>\n\n\n\n\n\t\t\t<\/div> \n\t\t<\/div>\n\t<\/div> \n<\/div><\/div>","protected":false},"excerpt":{"rendered":"A 5\u00aa Confer\u00eancia do Caribe sobre Doen\u00e7a Falciforme e Talassemia, organizada pelo CAREST e pela...","protected":false},"author":1,"featured_media":9394,"comment_status":"closed","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"iawp_total_views":32,"footnotes":""},"categories":[155,227,229],"tags":[],"class_list":{"0":"post-9392","1":"post","2":"type-post","3":"status-publish","4":"format-standard","5":"has-post-thumbnail","7":"category-recherche","8":"category-sante","9":"category-universite-actualites"},"yoast_head":"\n5\u00e8me Conf\u00e9rence Carib\u00e9enne sur la dr\u00e9panocytose et les Thalass\u00e9mies — Universit\u00e9 de Guyane<\/title>\n<meta name=\"description\" content=\"D\u00e9couvrez la conf\u00e9rence sur la dr\u00e9panocytose et les thalass\u00e9mies. 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